1 100 7 https://herstories.prattinfoschool.nyc/omeka/files/original/90/765/NoSPW_MeetingFDA_SideA.jpg 7b9dcad31202dbdbfdc5732e07c3ea9c https://herstories.prattinfoschool.nyc/omeka/files/original/90/765/SPW---_Meeting-at-FDA-Re-accelerated-approval_SideA.mp3 11d272508099e02defc73a78debe00c9 https://herstories.prattinfoschool.nyc/omeka/files/original/90/765/NoSPW_MeetingFDA_SideB.jpg 1975922fed9646ef80b10e5662ac7fd0 https://herstories.prattinfoschool.nyc/omeka/files/original/90/765/SPW---_Meeting-at-FDA-Re-accelerated-approval_SideB.mp3 03c3b172b71e4048d2f2bb778da9357d Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Women, AIDS, and ACT UP, 1988-1994 Sound A resource whose content is primarily intended to be rendered as audio. Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 00:31:09 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 24-Bit PCM, 96,000 Khz Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource FDA Accelerated Approval Meeting Subject The topic of the resource AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women Description An account of the resource Meeting between ACT UP and other HIV/AIDS activists and employees of the Federal Drug Administration regarding recent FDA activities in accelerated approval and expanded access to drugs. Meeting between AIDS activists, including ACT UP member Maxine Wolfe, and empolyees of the Federal Drug Administration. Also included in the meeting are researchers who studied HIV/AIDS in clinical trials, as well as physicians at various clinics. The purpose for the meeting was to discuss recent activities of the FDA regarding accelerated approval and expanded access to drugs. Also discussed are the influence of corporations and recent scandals. Creator An entity primarily responsible for making the resource Donated by Maxine Wolfe Date A point or period of time associated with an event in the lifecycle of the resource 1994-08-07 Contributor An entity responsible for making contributions to the resource Processed by Pratt School of Information LIS-668 students, Fall 2016 Rights Information about rights held in and over the resource Maxine Wolfe <a href="https://creativecommons.org/licenses/by-nc-nd/4.0/">Licensed under CC BY-NC-ND</a> Language A language of the resource English Identifier An unambiguous reference to the resource within a given context N/A Spatial Coverage Spatial characteristics of the resource. N/A Date Created Date of creation of the resource. Digitized on 2015-10-22 and 2015-10-29 Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to this material is restricted to contacting Maxine Wolfe prior to publication of any material for permission to use, quote, or paraphrase. PBCore PBCore is a metadata standard for audiovisual media developed by the public broadcasting community. See http://www.pbcore.org/documentation/ Digital Format Preservation Copy: WAV Access Copy: MP3 Digital Location An address for a digital media item. Employs an unambiguous reference or identifier for a digital rendition/instantiation of a media item and may include domain, path, filename or html page. This includes URIs for each digital file format created by the Internet Archive (will have multiple values). SPW---_Meeting-at-FDA-Re-accelerated-approval Notes Any other notes or information about the media item, including bibliography/research information, contact information, and legacy metadata. N/A Duration Provides a timestamp for the overall length or duration of the audio. Represents the playback time. Format: HH:MM:SS 00:31:10 Physical Format The format of a particular version or rendition of a media item as it exists in an actual physical form that occupies physical space (e.g., a tape on a shelf), rather than as a digital file residing on a server or hard drive. Audio cassette AIDS Clinical Trials Communities Consciousness Raising Drugs Education Health Care Maxine Wolfe Meetings Social Work Women's Health https://herstories.prattinfoschool.nyc/omeka/files/original/90/764/SPW1671_Side1.jpg 2fb554ab62224fcb758bce2d1ad5fa70 https://herstories.prattinfoschool.nyc/omeka/files/original/90/764/SPW1671_Women-in-ACT-UP-Organizing-Meeting_SideA.wav.mp3 23e49d5007ad37e427a61ab7f42b152d https://herstories.prattinfoschool.nyc/omeka/files/original/90/764/SPW1671_Side2.jpg f83d74ed0e80e35a22d4248b38eb47e6 https://herstories.prattinfoschool.nyc/omeka/files/original/90/764/SPW1671_Women-in-ACT-UP-Organizing-Meeting_SideB.wav.mp3 e57bda7db56a89a2790d1f834f9e75b4 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Women, AIDS, and ACT UP, 1988-1994 Sound A resource whose content is primarily intended to be rendered as audio. Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 00:31:03 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 24-Bit PCM, 96,000 Khz Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource ACT UP Organizing Meeting Subject The topic of the resource AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women Description An account of the resource Women in an ACT UP organizing meeting strategize how to recruit activists to grow their community and perform inclusive outreach to support different needs, specifically with connecting healthcare professionals with subjects. Side A: Women in an ACT UP organizing meeting strategize how to recruit activists to grow their community and perform inclusive outreach to support different needs. Specifically, the ways they might connect healthcare professionals with subjects willing to assist with research. Howard Minkoff, MD, is mentioned as an example of a healthcare professional who has successfully cultivated relationships with patients during clinical trials. Side B: Meeting continues with a stated focus on current studies related to perinatal transmission research are countered with suggestions for improved protocol. Creator An entity primarily responsible for making the resource Donated by Maxine Wolfe on 1993-07-26 Date A point or period of time associated with an event in the lifecycle of the resource 1991-12-02 to 1991-12-05 Contributor An entity responsible for making contributions to the resource Processed by Pratt School of Information LIS-668 students, Fall 2015 Rights Information about rights held in and over the resource Maxine Wolfe <a href="https://creativecommons.org/licenses/by-nc-nd/4.0/">Licensed under CC BY-NC-ND</a> Language A language of the resource English Identifier An unambiguous reference to the resource within a given context SPW1671 Spatial Coverage Spatial characteristics of the resource. N/A Date Created Date of creation of the resource. Digitized on 2015-10-29 Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to this material is restricted to contacting Maxine Wolfe prior to publication of any material for permission to use, quote, or paraphrase. PBCore PBCore is a metadata standard for audiovisual media developed by the public broadcasting community. See http://www.pbcore.org/documentation/ Digital Format Preservation Copy: WAV Access Copy: MP3 Digital Location An address for a digital media item. Employs an unambiguous reference or identifier for a digital rendition/instantiation of a media item and may include domain, path, filename or html page. This includes URIs for each digital file format created by the Internet Archive (will have multiple values). SPW1671_Women-in-ACT-UP-Organizing-Meeting Notes Any other notes or information about the media item, including bibliography/research information, contact information, and legacy metadata. Side A: Very low sound. Duration Provides a timestamp for the overall length or duration of the audio. Represents the playback time. Format: HH:MM:SS 00:31:07 Physical Format The format of a particular version or rendition of a media item as it exists in an actual physical form that occupies physical space (e.g., a tape on a shelf), rather than as a digital file residing on a server or hard drive. Audio cassette Activism AIDS Communities Consciousness Raising Drugs Education Health Care Meetings Political Movements Social Work Women's Health https://herstories.prattinfoschool.nyc/omeka/files/original/90/762/SPW1592_SideA.jpg 69a7187a812095a0d8e1bcc18680a400 https://herstories.prattinfoschool.nyc/omeka/files/original/90/762/SPW1592_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape3of3_SideA.wav.mp3 f030a646028b074147f08ee0f9c6f9b0 https://herstories.prattinfoschool.nyc/omeka/files/original/90/762/SPW1592_SideB.jpg f995c88e5725cee110824ae7395670d2 https://herstories.prattinfoschool.nyc/omeka/files/original/90/762/SPW1592_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape3of3_SideB.wav.mp3 840934bc631a98677814e26b7359d0e0 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Women, AIDS, and ACT UP, 1988-1994 Sound A resource whose content is primarily intended to be rendered as audio. Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 00:46:29 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 24-Bit PCM, 96,000 Khz Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource ACT UP and NIAID Meeting About Natural History Study of Women With HIV (Tape 3) Subject The topic of the resource AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women Description An account of the resource Meeting between NIAID employee Diane Hartnell and ACT UP, Women with HIV/AIDS, and AIDS activists in Bethesda, Maryland about AIDS research. Side B includes discussions about first women's natural history study with other NIAID employees. Side A: Meeting between ACT UP and Women with HIV/AIDS and AIDS activists Seh Welch, Mary Lucy, and Maxine Wolfe and National Institute of Allergy and Infectious Diseases (NIAID) employees, including Diane Hartnell, in Bethesda, Maryland. Hartnell, who began at the NIAID as Sten Vermund's assistant, discusses research and resources for health information regarding HIV/AIDS infected women, in addition to other issues involving women's health. Welch, Lucy, and Wolfe raise concerns about the research practices, pregnancy and AIDS, and gynocological infections. Side B: Meeting between Women with HIV/AIDS and AIDS activists Lauren Thomas, Marina Alvarez, Mary Giguere, Maxine Wolfe, and other ACT UP activists and National Institute of Allergy and Infectious Diseases (NIAID) employees about the first natural history study of women with HIV/AIDS. Although catalog entry lists Side B as first ACTG meeting with Sten Vermund, discussions do not include Vermund and focus on epidemiological issues for the first natural history study of women with HIV. Creator An entity primarily responsible for making the resource Donated by Maxine Wolfe on 1993-07-23 Date A point or period of time associated with an event in the lifecycle of the resource 1991-12-06 Contributor An entity responsible for making contributions to the resource Processed by Pratt School of Information LIS-668 students, Fall 2015 Rights Information about rights held in and over the resource Maxine Wolfe <a href="https://creativecommons.org/licenses/by-nc-nd/4.0/">Licensed under CC BY-NC-ND</a> Language A language of the resource English Identifier An unambiguous reference to the resource within a given context SPW1592 Spatial Coverage Spatial characteristics of the resource. Bethesda, Maryland Date Created Date of creation of the resource. Digitized on 2015-09-24 and 2015-10-22 Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to this material is restricted to contacting Maxine Wolfe prior to publication of any material for permission to use, quote, or paraphrase. PBCore PBCore is a metadata standard for audiovisual media developed by the public broadcasting community. See http://www.pbcore.org/documentation/ Digital Format Preservation Copy: WAV Access Copy: MP3 Digital Location An address for a digital media item. Employs an unambiguous reference or identifier for a digital rendition/instantiation of a media item and may include domain, path, filename or html page. This includes URIs for each digital file format created by the Internet Archive (will have multiple values). SPW1592_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape3of3 Notes Any other notes or information about the media item, including bibliography/research information, contact information, and legacy metadata. Catalog entry incorrectly lists Side B as ACTG Meetings with Sten Vermund, Tape 1 of 2 (Recorded between December 2 and 5, 1991). See SPW 1590 and 1591 (parts one and two of side 1), 1593 (part two of side 2). Side 2 has clicking and is quiet. Note enclosed with tapes is in the donors binder and typed in the notes for SPW 1590. Recorded Persons: Side I: Seh Welch, Mary Lucy, Maxine Wolfe, Diane Hartell Side 2: Sten Vennund, Evelyn, Diane, Karen, Lauren Thomas, Maxine Wolfe, Marina Alvarez, Mary Giguere Persons Mentioned: Dr. Helen Zadoff, Dr. Deborah Cot, Judy Feinberg, Diane Finkelstein Duration Provides a timestamp for the overall length or duration of the audio. Represents the playback time. Format: HH:MM:SS 00:46:14 Physical Format The format of a particular version or rendition of a media item as it exists in an actual physical form that occupies physical space (e.g., a tape on a shelf), rather than as a digital file residing on a server or hard drive. Audio cassette AIDS AIDS Clinical Trials Group (ACTG) Clinical Trials Communities Consciousness Raising Diane Hartnell Drugs Education Epidemiology Health Care Illness Marina Alvarez Mary Lucy Maxine Wolfe Meetings National Institute of Allergy and Infectious Diseases (NIAID) Seh Welch Social Work Women's Health https://herstories.prattinfoschool.nyc/omeka/files/original/90/761/SPW1591_SideA.jpg 5a25fdc4e3df25b62fd596ac5c368cb1 https://herstories.prattinfoschool.nyc/omeka/files/original/90/761/SPW1591_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape2of3_SideA.wav.mp3 fb113e7b36fbe636fa15765cf0c89a59 https://herstories.prattinfoschool.nyc/omeka/files/original/90/761/SPW1591_SideB.jpg ffe26f4af45efcdec57c51d310b45e20 https://herstories.prattinfoschool.nyc/omeka/files/original/90/761/SPW1591_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-first-Natural-History-Study-of-Women-with-HIV_Tape2of3_SideB.mp3 7bd9380d0bdf7aa501ca8e8a4e32a21c Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Women, AIDS, and ACT UP, 1988-1994 Sound A resource whose content is primarily intended to be rendered as audio. Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 00:46:02 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 24-Bit PCM, 96,000 Khz Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource ACT UP and NIAID Meeting About Natural History Study of Women with HIV (Tape 2) Subject The topic of the resource AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women Description An account of the resource Meeting between NIAID employee Diane Hartnell and ACT UP, Women with HIV/AIDS, and AIDS activists in Bethesda, Maryland regarding research, including the ACTG, women's natural history, sexual health, pregnancy, and questionnaires. Meeting between ACT UP and Women with HIV/AIDS and AIDS activists Seh Welch, Mary Lucy, Maxine Wolfe, and Marina Alvarez and National Institute of Allergy and Infectious Diseases (NIAID) employee Diane Hartnell in Bethesda, Maryland. Hartnell, who began at the NIAID as Sten Vermund's assistant, discusses research and resources (like the ODB database) for health information regarding HIV/AIDS infected women, in addition to other issues involving women's health. Welch, Lucy, Alvarez, and Wolfe raise concerns about the research questionnaires and practices, especially questions about pregnancy, the ACTG, women's natural history, sexual health, drug users, and the MACS study. Creator An entity primarily responsible for making the resource Donated by Maxine Wolfe on 1993-07-27 Date A point or period of time associated with an event in the lifecycle of the resource 1991-12-06 Contributor An entity responsible for making contributions to the resource Processed by Pratt School of Information LIS-668 students, Fall 2015 Rights Information about rights held in and over the resource Maxine Wolfe <a href="https://creativecommons.org/licenses/by-nc-nd/4.0/">Licensed under CC BY-NC-ND</a> Language A language of the resource English Identifier An unambiguous reference to the resource within a given context SPW1591 Spatial Coverage Spatial characteristics of the resource. Bethesda, Maryland Date Created Date of creation of the resource. Digitized on 2015-09-24 and 2015-10-22 Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to this material is restricted to contacting Maxine Wolfe prior to publication of any material for permission to use, quote, or paraphrase. PBCore PBCore is a metadata standard for audiovisual media developed by the public broadcasting community. See http://www.pbcore.org/documentation/ Digital Format Preservation Copy: WAV Access Copy: MP3 Digital Location An address for a digital media item. Employs an unambiguous reference or identifier for a digital rendition/instantiation of a media item and may include domain, path, filename or html page. This includes URIs for each digital file format created by the Internet Archive (will have multiple values). SPW1591_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape2of3 Notes Any other notes or information about the media item, including bibliography/research information, contact information, and legacy metadata. See SPW 1590 and 1592 (parts one and three). Strange background noise for most of tape but can still hear. Note is enclosed in donors binder and typed in·note for SPW 1590. Tape switches from this meeting to a different one with a slide show halfway through Side 2. Recorded Persons: Seh Welch, Mary Lucy, Maxine Wolfe, Diane Hartell, Marina Alvarez Persons Mentioned: Mary Jean Creek Duration Provides a timestamp for the overall length or duration of the audio. Represents the playback time. Format: HH:MM:SS 00:46:09 Physical Format The format of a particular version or rendition of a media item as it exists in an actual physical form that occupies physical space (e.g., a tape on a shelf), rather than as a digital file residing on a server or hard drive. Audio cassette AIDS AIDS Clinical Trials Group (ACTG) Clinical Trials Communities Consciousness Raising Drugs Education Epidemiology Health Care Illness Marina Alvarez Mary Lucy Maxine Wolfe Meetings National Institute of Allergy and Infectious Diseases (NIAID) Seh Welch Social Work Women's Health https://herstories.prattinfoschool.nyc/omeka/files/original/90/760/SPW1590_SideA.jpg 6a64131b9771cb3d70a669ee10305e09 https://herstories.prattinfoschool.nyc/omeka/files/original/90/760/SPW1590_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape1of3_SideA.wav.mp3 c40dc6491db2490258f0b134d58de680 https://herstories.prattinfoschool.nyc/omeka/files/original/90/760/SPW1590_SideB.jpg c104886129ce7bb386a11b9041055339 https://herstories.prattinfoschool.nyc/omeka/files/original/90/760/SPW1590_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape1of3_SideB.wav.mp3 09d76a8136078cd651ebc2ee2a97950c Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Women, AIDS, and ACT UP, 1988-1994 Sound A resource whose content is primarily intended to be rendered as audio. Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 00:46:09 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 24-Bit PCM, 96,000 Khz Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource ACT UP and NIAI Meeting About Natural History Study of Women with HIV (Tape 1) Subject The topic of the resource AIDS (Disease); AIDS (Disease)--Political aspects--United States; ACT UP (Organization); New York (State)--New York; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials; Drugs--Testing; Clinical trials of drugs; Drug bioscreening ; Drug trials ; Drugs--Clinical trials; Drugs--Effectiveness--Testing; Drugs--Evaluation; AIDS (Disease) in women Description An account of the resource Meeting between NIAID employee Diane Hartnell and ACT UP, Women with HIV/AIDS, and AIDS activists in Bethesda, Maryland regarding the inclusion and diversity of women in AIDS studies, sexual health, ACTG, and pediatric care. Meeting between ACT UP and Women with HIV/AIDS and AIDS activists Seh Welch, Mary Lucy, Maxine Wolfe and National Institute of Allergy and Infectious Diseases (NIAID) employee Diane Hartnell in Bethesda, Maryland. Hartnell, who began at the NIAID as Sten Vermund's assistant, discusses research and resources for health information regarding HIV/AIDS infected women, in addition to other issues involving women's health. Welch, Lucy, and Wolfe raise concerns about the inclusion of women in AIDS studies, sexual health, the ACTG, pediatric care, and diversity in research participants (especially Native American women). Creator An entity primarily responsible for making the resource Donated by Maxine Wolfe on 1993-07-23 Date A point or period of time associated with an event in the lifecycle of the resource 1991-12-06 Contributor An entity responsible for making contributions to the resource Processed by Pratt School of Information LIS-668 students, Fall 2015 Rights Information about rights held in and over the resource Maxine Wolfe <a href="https://creativecommons.org/licenses/by-nc-nd/4.0/">Licensed under CC BY-NC-ND</a> Language A language of the resource English Identifier An unambiguous reference to the resource within a given context SPW1590 Spatial Coverage Spatial characteristics of the resource. Bethesda, Maryland Date Created Date of creation of the resource. Digitized on 2015-09-24 and 2015-10-22 Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to this material is restricted to contacting Maxine Wolfe prior to publication of any material for permission to use, quote, or paraphrase. PBCore PBCore is a metadata standard for audiovisual media developed by the public broadcasting community. See http://www.pbcore.org/documentation/ Digital Format Preservation Copy: WAV Access Copy: MP3 Digital Location An address for a digital media item. Employs an unambiguous reference or identifier for a digital rendition/instantiation of a media item and may include domain, path, filename or html page. This includes URIs for each digital file format created by the Internet Archive (will have multiple values). SPW1590_Epidemiology-Meeting-between-ACT-UP-and-NIAID-about-First-Natural-History-Study-of-Women-with-HIV_Tape1of3 Notes Any other notes or information about the media item, including bibliography/research information, contact information, and legacy metadata. See SPW 1591 and 1592 (parts two and three). Note included with tape is enclosed in donors binder and reads as follows: Meetings between Women with HIV/AIDS and AIDS activists with Sten Vermund, head of epidemiology at NIAID and later that week with staff people at NIAID (arranged by Diane Hartell) to discuss the first natural history study of women with HIV, Dec. 4, 1991 and Dec. 6, 1991 As part of the ACT UP Women's Network's ongoing work concerning women with HIV we had made a demand at our July meeting with Tony Fauci that there had to be a major epidemiological study of women with HIV. The NIAID had conducted the MACS study following 5,000 gay/bi men with HIV from 1984 on, spent millions on it and it served as the basis for all of the info about T cells, infections, etc. But it did not contain any women. Sten Vermund, of NIAID, who organized that study, had been pleading for one for women for years but Fauci paid him no mind, partly because he was busy pacifying the ACT UP men who eventually became his supporters (Mark Harrington, Peter Staley, et al.) by putting all of NIAID's money into clinical trials for men. Sten Vermund was, and as of this writing still is, an ally of the ACT UP women (he had done research on HPV and HIV). In our CDC campaign he was the lone government voice supporting our position. We arranged this meeting with him to state our concerns about this first study (which we pressured Fauci to fund) in terms of who would be in it, how it would be done, etc. Diane Harte II was a good friend of Jeff Gates, a PW A from ACT UP NY who was also a friend of mine. She got this job working as Sten's assistant (before she had worked with injection drug using women) and orchestrated all of these meetings to support us. The first meeting took place with Sten and about 25 people attending during the ACTG meetings also held that week. Then on Friday, Dec. 6, about 15 women we had organized met with other NIAID staff people involved in ongoing epi studies and who would be involved in the later ones. We shared with The epi study was finally funded and then Bush appointed Healy as head of NIH and she held up the fund to "review" the work. We did a national phone zap and got the funds released. At that meeting with Sten we insisted that we have people on the peer review panels to avoid doing business as usual (giving grants to wellheeled researchers who saw no women) and that we also create a national overview board with women PW As and activists to make sure the study went well. We also told him he had to help those sites seeing all of the women who were not researchers to create grant applications which could get the funding. Both happened and because Linda Meredith and Keri Duran (HIV+, Boston ACT UP) sat on the peer review panel, the final grants went to Judith Cohen's group in SF, Kathy Anastas' group in the Bronx and Mary Lucy's group (Alexandra Levine, MD) in LA. All of these studies included lesbian issues and all were based on cooperation with community based groups. A fourth one went to Mary Young at Georgetown who was an M.D. we located and enlisted in our CDC and SSA work because she had data relevant and saw many women. However, her grant was not great but they gave it to her anyway. At this writing the grant is just beginning. Recorded Persons: Seh Welch, Mary Lucy, Maxine Wolfe, Diane Hartell Persons Mentioned: Marsha Cannichael, Dawn Smith, Martha Rogers, Eliza Sullivan, Gloria Weissman, Bert Peterson, Carol Hogue Duration Provides a timestamp for the overall length or duration of the audio. Represents the playback time. Format: HH:MM:SS 00:29:30 Physical Format The format of a particular version or rendition of a media item as it exists in an actual physical form that occupies physical space (e.g., a tape on a shelf), rather than as a digital file residing on a server or hard drive. Audio cassette AIDS AIDS Clinical Trials Group (ACTG) Clinical Trials Communities Consciousness Raising Diane Hartnell Drugs Education Epidemiology Health Care Illness Mary Lucy Maxine Wolfe Meetings National Institute of Allergy and Infectious Diseases (NIAID) Seh Welch Social Work Women's Health https://herstories.prattinfoschool.nyc/omeka/files/original/90/758/SPW1521_Side1.jpg 97e9e0b2e80ffb57e6db6def5ca0599b https://herstories.prattinfoschool.nyc/omeka/files/original/90/758/SPW1521_Meeting-between-ACT-UP-and-NIAID-on-women-and-HIVAIDS_SideA.wav.mp3 73cbf8c34e1ad89eb3abc7ebc7a2aa02 https://herstories.prattinfoschool.nyc/omeka/files/original/90/758/SPW1521_Side2.jpg 7dc951c9e6af56603e12897c7acd96fb https://herstories.prattinfoschool.nyc/omeka/files/original/90/758/SPW1521_Meeting-between-ACT-UP-and-NIAID-on-women-and-HIVAIDS_SideB.wav.mp3 eed47177ec069fd076c43256e1229bbf Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Women, AIDS, and ACT UP, 1988-1994 Sound A resource whose content is primarily intended to be rendered as audio. Duration Length of time involved (seconds, minutes, hours, days, class periods, etc.) 00:44:47 Bit Rate/Frequency Rate at which bits are transferred (i.e. 96 kbit/s would be FM quality audio) 24-Bit PCM, 96,000 Khz Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource ACT UP and NIAID Meeting on Women and HIV/AIDS Subject The topic of the resource AIDS (Disease) AIDS (Disease)--Political aspects--United States; ACT UP (Organization); AIDS (Disease)--Political aspects; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Clinical trials--Reporting; Clinical drug trials ; Drugs--Testing ;Clinical trials of drugs ; Drug bioscreening ; Drug trials ; Drugs--Clinical trials ; Drugs--Effectiveness--Testing ; Drugs--Evaluation ; AIDS (Disease) in women Description An account of the resource Director of NIAID, Tony Fauci, listens to a presentation by ACT UP activists from New York and Washington, D.C. about the neglect of research for women's health issues in contrast to men's, plus statistics about women with AIDS. Side A: The director of NIAID, Tony Fauci, listens to a presentation by ACT UP New York activists Maxine Wolfe, Risa Denenberg, Heidi Doro and ACT UP D.C. activists Lorrie Sprecher, Linda Meredith. Topics focus on the neglect of research for women's health issues in contrast to men's, plus statistics about women with AIDS. Start of tape includes a brief discussion with Fauci's colleagues about why they would like to record the meeting with video and audio. SIDE B: Conversation continues about the need to develop of research protocols that include women, including criteria for writing grants, primary healthcare for research subjects during clinical health trials, funding for the creation of research sites, priority to trial designs that include women, and other desired actions. Creator An entity primarily responsible for making the resource Donated by Maxine Wolfe on 1993-07-26 Date A point or period of time associated with an event in the lifecycle of the resource 1990-07-27 Contributor An entity responsible for making contributions to the resource Processed by Pratt School of Information LIS-668 students, Fall 2018 Rights Information about rights held in and over the resource Maxine Wolfe <a href="https://creativecommons.org/licenses/by-nc-nd/4.0/">Licensed under CC BY-NC-ND</a> Language A language of the resource English Identifier An unambiguous reference to the resource within a given context SPW1521 Spatial Coverage Spatial characteristics of the resource. 1600 Clifton Rd, Atlanta, GA 30333 Date Created Date of creation of the resource. Digitized on 2015-09-24 Access Rights Information about who can access the resource or an indication of its security status. Access Rights may include information regarding access or restrictions based on privacy, security, or other policies. Access to this material is restricted to contacting Maxine Wolfe prior to publication of any material for permission to use, quote, or paraphrase. PBCore PBCore is a metadata standard for audiovisual media developed by the public broadcasting community. See http://www.pbcore.org/documentation/ Digital Format Preservation Copy: WAV Access Copy: MP3 Digital Location An address for a digital media item. Employs an unambiguous reference or identifier for a digital rendition/instantiation of a media item and may include domain, path, filename or html page. This includes URIs for each digital file format created by the Internet Archive (will have multiple values). SPW1521_Meeting-between-ACT-UP-and-NIAID-on-women-and-HIVAIDS Notes Any other notes or information about the media item, including bibliography/research information, contact information, and legacy metadata. N/A Duration Provides a timestamp for the overall length or duration of the audio. Represents the playback time. Format: HH:MM:SS 00:44:52 Physical Format The format of a particular version or rendition of a media item as it exists in an actual physical form that occupies physical space (e.g., a tape on a shelf), rather than as a digital file residing on a server or hard drive. Audio cassette AIDS AIDS Clinical Trials Group (ACTG) Communities Consciousness Raising Education Health Care Linda Meredith Maxine Wolfe Meetings National Institute of Allergy and Infectious Diseases (NIAID) Political Movements Women's Health https://herstories.prattinfoschool.nyc/omeka/files/original/90/747/LivingWithAIDS.png 89e236379542c2e5fea14432963a098b https://herstories.prattinfoschool.nyc/omeka/files/original/90/747/21_LivingWithAids_1.mp4 d2d1fe2ed3b59ed419bceee84609da5a Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Women, AIDS, and ACT UP, 1988-1994 Technical Video Recording Metadata elements specific to Video Recordings, taken from PBCore and LC-AV (interoperable with METSRights) to supplement Dublin Core. File Size .AVI: 6.38 GB, .MP4: 552.6 MB Data Rate 16 bit/32 kHz Aspect Ratio 4:3 Frame Rate* 29.97 Resolution .AVI: 720 x 480 .MP4: 320 x 240 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Gay Men's Health Crisis [Living with AIDS], Subject The topic of the resource AIDS (Disease)--Political aspects; United States; AIDS (Disease)--History; AIDS (Disease)--Social aspects--United States; Drugs--Testing; Clinical trials of drugs; Drug trials; AIDS (Disease) in women Description An account of the resource Episode of Gay Men's Health Crisis (GMHC) cable show Living with AIDS, covering topics related to women with AIDS. Episode of Gay Men's Health Crisis (GMHC) cable show Living with AIDS, covering topics related to women with AIDS. Begins with clip from CBS special "Aids Hits Home", acknowledging new media coverage of heterosexual women with AIDS because of an inherent threat to middle class. Ruth Rodriguez from the Hispanic AIDS Forum notes that IV drug users comprise 60% of HIV+ women, a social group largely ignored by health professionals. Outreach and AIDS education media should be produced for a range of social groups. References Needle Talk, a series released by the New York Department of Health with physicians and educators discussing IV drug use, sex, and AIDS/HIV transmission. Creator An entity primarily responsible for making the resource Jean Carlomusto; Donated by Maxine Wolfe in 1993 Date A point or period of time associated with an event in the lifecycle of the resource Undated Contributor An entity responsible for making contributions to the resource Processed by Pratt School of Information LIS-668 students, Fall 2015 Rights Information about rights held in and over the resource Gay Men's Health Crisis <a href="https://creativecommons.org/licenses/by-nc-nd/4.0/">Licensed under CC BY-NC-ND</a> Language A language of the resource English Identifier An unambiguous reference to the resource within a given context 21 Spatial Coverage Spatial characteristics of the resource. New York City, New York Date Created Date of creation of the resource. Digitized on 2015-10-01 PBCore PBCore is a metadata standard for audiovisual media developed by the public broadcasting community. See http://www.pbcore.org/documentation/ Physical Format The format of a particular version or rendition of a media item as it exists in an actual physical form that occupies physical space (e.g., a tape on a shelf), rather than as a digital file residing on a server or hard drive. 1/2 inch videotape Digital Format Preservation Copy: AVI with DV codec Access Copy: MP4 Digital Location An address for a digital media item. Employs an unambiguous reference or identifier for a digital rendition/instantiation of a media item and may include domain, path, filename or html page. This includes URIs for each digital file format created by the Internet Archive (will have multiple values). 21_LivingWithAids_1 Duration Provides a timestamp for the overall length or duration of the audio. Represents the playback time. Format: HH:MM:SS 00:15:00 Notes Any other notes or information about the media item, including bibliography/research information, contact information, and legacy metadata. Encoding: DV Video (dvsd). Multiple minutes contain tracking issues. Activism AIDS Communities Consciousness Raising Drugs Education Health Care Illness Meetings Political Movements Social Work Women's Health